Organising Committee

  • Dr Marina Aksenova

    Veltischev Research and Clinical Institute for Pediatrics of the Pirogov Russian National Research Medical University, Moscow, Russia

  • Assistant Professor Moumita Barua

    Toronto General Hospital, Toronto, Canada

  • Dr Agnė Čerkauskaitė

    Division of diagnosis and treatment of Rare Kidney and Metabolic Diseases, Nephrology Center, Vilnius University Hospital Santaros Klinikos, Vilnius, Lithuania

  • Professor Constantinos Deltas

    School of Medicine, University of Cyprus, and biobank.cy, Center of Excellence in Biobanking and Biomedical Research, Nicosia, Cyprus

  • Professor Jie Ding

    Department of Pediatrics, Peking University First Hospital, Beijing, China

  • Professor Frances Flinter

    Emeritus Professor of Clinical Genetics, Guy’s and St Thomas’ NHS Foundation Trust, London, UK

  • Alessia Fornoni MD PhD

    Katz Professor of Medicine,University of Miami

  • Professor Daniel Gale

    Department of Renal Medicine, University College London, UK

  • Professor Danica Galešić-Ljubanović

    Department of Pathology University of Zagreb School of Medicine, Head of Department of Nephropathology and Electron Microscopy, Dubrava University Hospital, Zagreb, Croatia

  • Professor Oliver Gross

    Department of Nephrology and Rheumatology, Georg-August-Universität Göttingen, Germany

  • Professor Julia Höfele

    Institute of Human Genetics, Munich, Germany

  • Dr Valentine Gillion

    Centre des maladies neuro-cutanées congénitales.Service de néphrologie - Consultations

  • Professor Hirofumi Kai

    Graduate School of Pharmaceutical Sciences, Kumamoto University, Japan

  • Professor Clifford Kashtan

    Department of Pediatrics, University of Minnesota, USA

  • Professor Bertrand Knebelmann

    Necker Hospital, Paris, France

  • Associate Professor Ron Korstanje

    The Jackson Laboratory, Bar Harbor, USA

  • Professor Rachel Lennon

    Senior Research Fellow and Consultant Paediatric Nephrologist, Manchester, UK

  • Assistant Professor Becky Mingyao Ma,

    University of Hong Kong, Hong Kong

  • Associate Professor Beata Lipska

    Department of Biology and Medical Genetics, Medical University of Gdańsk

  • Dr Laura Massella

    Division of Nephrology, Dpt. of Pediatric Subspecialties, Bambino Gesù Children's Hospital - IRCCS, Rome, Italy

  • Professor Julian Midgley

    Department of Paediatrics, Alberta Children’s Hospital, Canada

  • Professor Jeffrey Miner

    Washington University in St. Louis, USA

  • Associate Professor, Kar Hui Ng

    Department of Paediatrics, Yong Loo Lin School of Medicine, National University of Singapore

  • Dr Thomas Oates

    Consultant Physician, Departments of Nephrology and General Medicine, Royal London Hospital, UK

  • Professor Luiz F. Onuchic, MD, PhD

    Professor of Medicine, University of São Paulo School of Medicine, São Paulo, Brazil

  • Associate Professor Laura Perin

    Saban Research Institute, University of Southern California, USA

  • Mary-Beth Roberts, MS, CGC,

    Genetic Counselor, Cleveland Clinic, Ohio, USA

  • Professor Alessandra Renieri

    Professor of Medical Genetics, Director of Medical Genetics Unit, Azienda Ospedaliera Universitaria Senese viale Bracci 2, Siena, Italy

  • Associate Professor Michelle Rheault

    Department of Pediatrics, University of Minnesota, USA

  • Professor Judith Savige

    University of Melbourne, Australia

  • Professor Roser Torra

    Fundació Puigvert, Barcelona, Spain

  • Professor Neil Turner

    Professor of Nephrology Emeritus, University of Edinburgh

  • Dr Andreia Watanabe

    Division of Pediatric Nephrology, University of Sao Paulo School of Medicine, São Paulo, Brazil

  • Dr Janewit Wongboonsin

    Genetic Nephrologist, Siriraj Hospital, Mahidol University, Thailand. Renal division, Brigham and Women’s Hospital, Boston, MA, USA

  • Dr Dave Blatt

    Alport Foundation of Australia

  • Maria José Cacharron

    Spain

  • Mr Cai

    Chinese patient group, China

  • Ryoko Ernst-Hites,

    Francophone patient group, Belgium

  • Christof Finkler & Ute Rosenthal

    Alport Selbsthilfe, Germany

  • Susie Gear

    Alport UK

  • Gisèle Hites

    Francophone patient group, Belgium

  • Julia Schifter

    Alport Foundation Israel

  • André Weinstock

    USA

  • Jessie Zhang

    Chinese patient group, China